Second National Conference on
Genetics, Ethics and the Law
June 1-2, 2011
University of Virginia School of Law
Charlottesville, Virginia
Join us for a cutting-edge, two-day conference on genetics, ethics and the law June 1-2, 2011 in Charlottesville, Va., sponsored by the University of Virginia law and medical schools and the American Society of Human Genetics. Targeted at medical geneticists, genetics researchers, genetics counselors, physicians, nurses and allied healthcare providers, the course will explore the legal and bioethical implications of novel genetics and genomics from American and global perspectives, through a series of lectures, workshops and case discussions.
The National Society of Genetic Counselors (NSGC) has authorized the conference for up to 1.3 CEUs or 12.9 contact hours (Category 1). The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of certification and recertification.
Topics include:
- Ethical concepts in genetics ("genethics")
- Liability and risk management to avoid malpractice
- Informed consent in genetic testing and research
- Confidentiality and the duty to warn about genetic-related conditions
- Individual and group privacy interests concerning identifiable genetic data
- Ethical analysis of public health initiatives (genetic screening, national repositories)
- Insurance and employment discrimination based on genetic predisposition
- Genetics and intellectual property
Schedule
Withers-Brown Hall Room 104 except where indicated
| June 1, 2011 | |
| Morning Session: Introduction | |
| 11:00-11:15 | General Introduction Paul G. Mahoney, Dean, University of Virginia School of Law Steve Rich, Professor, Robert M. Berne Cardiovascular Research Center, University of Virginia |
| 11:15-12 | Genetics, Genomics and Public Health in the 21st Century, Muin Khoury (CDC) |
| 12-12:45 | “Gene-ethics” – Applying Bioethical Concepts to Genetics and Genomics, Lois Shepherd (UVA) |
| 12:45-1:45 | Working lunch with workshops on ethics case discussions; pick up lunch in Withers-Brown Hall Student Lounge #1 |
| Afternoon Session: Patients and Their Families | |
| 2-2:45 | Consent and Confidentiality, Sonia M. Suter (George Washington) |
| 2:45-3:30 | The Right-to-Know/Not-to-Know; Individual and Family Rights, Madaline Harrison (UVA) |
| 3:30-3:45 | Break; refreshments in Withers-Brown Hall Student Lounge #1 |
| 3:45-4:15 | The Journey to GINA, Joann Boughman (ASHG) |
| 4:15-5 | Privacy and Discrimination in the Post-GINA Era, Mark A. Rothstein (Louisville) |
| 5-5:20 | Discussion |
| June 2, 2011 | |
| Morning Session: Genetic Testing, Personalized Medicine, and Liability | |
| 7:45-8:15 | Continental Breakfast, Withers-Brown Hall Student Lounge #1 |
| 8:15-9 | Legal and Ethical Challenges of Genetic Testing and Screening, Ruth Bernheim (UVA) |
| 9-9:40 | Regulating Genetic Tests, Lawrence Silverman (UVA) |
| 9:40-10:20 | Personalized Medicine, DTC Marketing, and the FDA, Margaret Riley (UVA) |
| 10:20-10:40 | Break; refreshments in Withers-Brown Hall Student Lounge #1 |
| 10:40-11:20 | Behavioral Genetics Developments and Challenges, Danielle M. Dick (VCU) and Mark A. Rothstein (Louisville) |
| 11:20-12:30 | Genetics and Malpractice/Negligence, Gil Siegal (UVA) |
| 12:30-1:30 | Working Lunch with workshops on ethics case discussions; pick up lunch in Withers-Brown Hall Student Lounge #1 |
| Afternoon Session: Research, Intellectual Property, and Commercial Issues Moderator: Mark Herzog (Executive Director, VABio) |
|
| 1:45-2:30 | Biobanks: Comparative Ethical and Legal Analysis, Gil Siegal (UVA) |
| 2:30-3:15 | Legal Challenges to Gene Patents, Margo Bagley (UVA) |
| 3:15-3:30 | Break; refreshments in Withers-Brown Hall Student Lounge #1 |
| 3:30-4 | Intellectual Property, John P. Breen (Barnes & Thorneburg) |
| 4-4:45 | From Your Lab to NASDAQ, Martin D. Chapman (President, Indoor Biotechnologies Inc.) |
| 4:45-5 | Awarding certificates and adjourn |
Organizing Committee: Richard Bonnie, Margaret Riley, Mark Rothstein, Gil Siegal, Lawrence Silverman
For more information, contact lawevents@virginia.edu.
The ASHG supports the educational objectives of this conference, but does not necessarily endorse the views expressed by any of the speakers.
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